“To Protect the overall interests of Thalassemics and prevent Thalassemia.”
“To advocate for a Thalassemia Free India where all Thalassemics are cured or healthy.”
(Premised on the discussion with members and volunteers present at its Orientation Programme held on 29 July 2018 learnings from the “Train the Trainer Programme” held by Thalassemia International Federation (TIF) at Greece from 21-23 Sep 2018 learnings from the Organisational Effectiveness Management Programme “Saksham” held by SPJIMR, Mumbai TIF-TPAG meeting held on 25 Nov 2018 at New Delhi.)
Recognising the need and value of advocacy in the area of thalassemia, seven adult thalassemics accomplished in the fields of psychology, law, IT and education, came together to found Thalassemia Patients Advocacy Group (TPAG) under the aegis of Thalassemics India in 2017. On 16 September 2017, TPAG was formally launched by Mr. Manish Sisodia, Deputy Chief Minister of the National Capital Territory of Delhi.
Orientation Programme held on 29 July 2018
“Train the Trainer Programme” held by Thalassemia International Federation (TIF) at Greece from 21-23 Sep 2018
Thalassemia is a blood disorder passed down through families (inherited) in which the body makes an abnormal form or inadequate amount of hemoglobin. India is the thalassemia capital of the world. Together, we set out to change that. In 2017, seven adult blood transfusion dependent thalassemics came together to set up Thalassemia Patients Advocacy Group (TPAG), under the aegis of Thalassemics India (parent body). What started with seven, spread to over thirty-five members and volunteers across India in less than two years. Between thirty-five of us and supported by our parent body’s legacy, we share a network of over ten thousand thalassemics in the country.
Empowered with knowledge about our condition; experienced in fields like law, teaching, psychology and information technology; and exposed to geographies around the world – we exist to protect the overall interests of thalassemics and prevent Thalassemia in India.
Some TPAG members at Organisational Effectiveness Management Programme “Saksham” held by SPJIMR
TIF-TPAG meeting held on 25 Nov 2018 at New Delhi